IPOPI (International Patient Organisation for Primary Immunodeficiencies)

Noticias de International Patient Organisation for Primary Immunodeficiencies

• First African Registry for Inborn Errors of Immunity/Primary Immunodeficiencies

  

  Developed by the ASID Registry Team in collaboration with IPOPI and African patient organisations, this important initiative will help improve our understanding of IEI/PID across Africa and support better care for patients. 📢 If you are an African healthcare professional involved in the diagnosis or care of people with IEI/PID, we invite you to complete […]

  The post First African Registry for Inborn Errors of Immunity/Primary Immunodeficiencies first appeared on IPOPI.

• Shaping EU Policy for PIDs & SIDs

  

• Global Stakeholders’ Summit 2026 Explores the Future of PIDs

  

• New PID Life Index Leaflet Highlights Global Access to SCID Newborn Screening

  

• Applications Open for the Jose Drabwell Research Grant Programme