IPOPI (International Patient Organisation for Primary Immunodeficiencies)

Noticias de International Patient Organisation for Primary Immunodeficiencies

1. New Mini-Doc: Pulmonary Alveolar Proteinosis (PAP) – A Hidden Challenge in PIDs

   

   Pulmonary Alveolar Proteinosis (PAP) is a rare and often overlooked complication affecting people living with Primary Immunodeficiencies (PIDs). Despite its serious impact on respiratory health, PAP can remain undiagnosed for years due to its non-specific symptoms and limited awareness among healthcare professionals. This mini-documentary explores how PAP affects the lungs, why it is frequently missed […]

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2. New Educational Leaflet on SIDs is Out!

   

   Discover IPOPI’s newest leaflet on Secondary Immunodeficiencies (SIDs). Designed for patients, caregivers, and healthcare professionals, this educational tool aims to increase understanding of SIDs — an often under-recognised area of immune health. Through clear explanations and practical guidance, the leaflet educates readers on what SIDs are, the challenges of diagnosing and managing SIDs, and their […]

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3. Secondary Immunodeficiencies (SIDs)

   

4. Meet Dr Inês Serra: 1st Place Poster Winner at IPIC2025

   

   Among this year’s outstanding abstracts, three winners were selected to receive special recognition at IPIC2025, with a certificate, a grant, and the opportunity to present their work during a dedicated session. We congratulate Dr Inês Serra on achieving 1st place with her work, “Analysis of Genetic Overlap Between Inborn Errors of Immunity and Neurodevelopmental Disorders.” Her […]

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5. Thank You and See You in Mallorca!

   

   We extend our heartfelt thanks to everyone who made IPIC2025 an unforgettable success! With over 900 attendees, IPIC2025 was a truly inspiring gathering of our global community—filled with learning, collaboration, and shared commitment to advancing care for people with primary immunodeficiencies. As we close this remarkable chapter, we are already looking ahead with excitement to our […]

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