IPOPI (International Patient Organisation for Primary Immunodeficiencies)

Noticias de International Patient Organisation for Primary Immunodeficiencies

• IPOPI’s 2025 Review of Activities and Achievements

  

  Looking back at a year of progress, collaboration and growth, the Review of Activities and Achievements 2025 brings together some of the key moments that shaped IPOPI’s work and the global PID community. Among the key moments of the year were the success of IPIC2025 in Prague, which brought together more than 900 participants, regional […]

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• First African Registry for Inborn Errors of Immunity/Primary Immunodeficiencies

  

  Developed by the ASID Registry Team in collaboration with IPOPI and African patient organisations, this important initiative will help improve our understanding of IEI/PID across Africa and support better care for patients. 📢 If you are an African healthcare professional involved in the diagnosis or care of people with IEI/PID, we invite you to complete […]

  The post First African Registry for Inborn Errors of Immunity/Primary Immunodeficiencies first appeared on IPOPI.

• Shaping EU Policy for PIDs & SIDs

  

• Global Stakeholders’ Summit 2026 Explores the Future of PIDs

  

• New PID Life Index Leaflet Highlights Global Access to SCID Newborn Screening