IPOPI (International Patient Organisation for Primary Immunodeficiencies)
Noticias de International Patient Organisation for Primary Immunodeficiencies
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IPOPI statement on the Council’s SoHO position
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IPOPI’s Position on the EU Parliament’s SoHO Legislation Vote
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IPOPI celebrates 70 members!
We are excited to share the news of reaching a significant milestone: the IPOPI family has now grown to 70 members! We extend a warm welcome to the Lithuanian Society of Primary Immunodeficiencies (IMUNAS), as the latest member of our network of national member organisations. Patient organisations play a crucial role in enhancing access to […]
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The PID Odyssey 2030: outlooks, unmet needs, hurdles, and opportunities
The IPOPI Global Multi-Stakeholders’ Summit in 2022 marked a pivotal moment for the Primary Immunodeficiency (PID) community, fostering forward-thinking discussions among stakeholders to shape the future priorities of PID care. In this article, we’re excited to share the comprehensive recommendations that emerged from this groundbreaking summit. From newborn screening to curative therapies During the summit, […]
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IPOPI’s 2022 Review of Activities and Achievements
2022 was a very special year for IPOPI, as we celebrated our 30th anniversary as an organisation! We had the pleasure of celebrating this milestone at the Global Patients’ Meeting in Gothenburg, Sweden, together with over 100 patient advocates from 34 countries. During this festivity, we seized the opportunity to appreciate current and successive Board […]
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