IPOPI (International Patient Organisation for Primary Immunodeficiencies)

Noticias de International Patient Organisation for Primary Immunodeficiencies

1. IPOPI’s 2020 Review of Activities and Achievements

   

   GPM, Webinars, PID Forum and more, this past 2020

   The post IPOPI’s 2020 Review of Activities and Achievements first appeared on IPOPI.

2. 4ID app: the new health agenda for patients with immunodeficiencies

   

   Log symptoms, update prescriptions, follow treatments and view daily health summaries

   The post 4ID app: the new health agenda for patients with immunodeficiencies first appeared on IPOPI.

3. PID Patient true stories: awareness campaign on the need of plasma

   

   PID patients true stories dedicated to addressing the worldwide need for more regionally balanced plasma collection

   The post PID Patient true stories: awareness campaign on the need of plasma first appeared on IPOPI.

4. IPOPI now part of TRANSFORM

   

   New stakeholder of the European Alliance for Transformative Therapies

   The post IPOPI now part of TRANSFORM first appeared on IPOPI.

5. Two milestone EU Events on Newborn Screening

   

   Launch Meeting of the ERN Expert Platform on NBS and the Slovenian Presidency Event on NBS

   The post Two milestone EU Events on Newborn Screening first appeared on IPOPI.